Abstract
The International Classification of Functioning children and youth version (ICF-CY)
provides a universal framework for defining and classifying functioning and disability
in children worldwide. To facilitate the application of the ICF in practice, ICF based-tools
like the “ICF Core Sets” are being developed. In the context of the development of
the ICF-CY Core Sets for children with Cerebral Palsy (CP), the aims of this study
were as follows: to identify and compare the content of outcome measures used in studies
of children with CP using the ICF-CY coding system; and to describe the most frequently
addressed areas of functioning in those studies. We searched multiple databases likely
to capture studies involving children with CP from January 1998 to March 2012. We
included all English language articles that studied children aged 2–18 years and described
an interventional or observational study. Constructs of the outcome measures identified
in studies were linked to the ICF-CY by two trained professionals. We found 231 articles
that described 238 outcome measures. The outcome measures contained 2193 concepts
that were linked to the ICF-CY and covered 161 independent ICF-CY categories. Out
of the 161 categories, 53 (33.5%) were related to body functions, 75 (46%) were related
to activities/participation, 26 (16.1%) were related to environmental factors, and
7 (4.3%) were related to body structures. This systematic review provides information
about content of measures that may guide researchers and clinicians in their selection
of an outcome measure for use in a study and/or clinical practice with children with
CP.
Keywords
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Article info
Publication history
Published online: September 19, 2013
Accepted:
August 7,
2013
Received:
February 25,
2013
Identification
Copyright
© 2013 European Paediatric Neurology Society. Published by Elsevier Inc. All rights reserved.
