Highlights
- •First ICF-based toolbox of measures for children and youth with CP is proposed.
- •The twenty-five multiple-item measure toolbox operationalizes the ICF Core Sets for children and youth with CP.
- •No single psychometrically robust measure fully represents the content of the ICF Core Sets for CP.
- •The toolbox guides professionals seeking comprehensive valid and reliable measures.
Abstract
Selecting appropriate measure(s) for clinical and/or research applications for children
and youth with Cerebral Palsy (CP) poses many challenges. The newly developed International
Classification of Functioning, Disability and Health (ICF) Core Sets for children
and youth with CP serve as universal guidelines for assessment, intervention and follow-up.
The aims of this study were: 1) to identify valid and reliable measures used in studies
with children and youth with CP, 2) to characterize the content of each measure using
the ICF Core Sets for children and youth with CP as a framework, and finally 3) to
create a toolbox of psychometrically sound measures covering the content of each ICF
Core Set for children and youth with CP. All clearly defined multiple-item measures
used in studies with CP between 1998 and 2015 were identified. Psychometric properties
were extracted when available. Construct of the measures were linked to the ICF Core
Sets. Overall, 83 multiple-item measures were identified. Of these, 68 measures (80%)
included reliability and validity testing. The majority of the measures were discriminative,
generic and designed for school-aged children. The degree to which measures with proven
psychometric properties represented the ICF Core Sets for children and youth with
CP varied considerably. Finally, 25 valid and reliable measures aligned highly with
the content of the ICF Core Sets, and as such, these measures are proposed as a novel
ICF Core Sets-based toolbox of measures for CP. Our results will guide professionals seeking appropriate measures to meet their
research and clinical needs worldwide.
Keywords
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Article info
Publication history
Published online: November 03, 2016
Accepted:
October 20,
2016
Received in revised form:
October 6,
2016
Received:
October 18,
2015
Identification
Copyright
© 2016 European Paediatric Neurology Society. Published by Elsevier Ltd. All rights reserved.
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- Editorial commentary on ‘Toolbox of multi-item measures aligning with ICF core sets for children and youth with cerebral palsy’European Journal of Paediatric NeurologyVol. 21Issue 2
- PreviewWe all know that choosing the most appropriate test from the wide variety of measures devised to assess function and interventional outcomes in children and young people with cerebral palsy can be confusing for both researchers and busy clinicians alike. Dr Schiariti's group has provided a comprehensive and robust overview of the current English Language options in line with the ICF framework. As part of this process they also, appropriately, highlight the important role of using validated measures to help us collaborate on an international perspective.
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